Cornelia De Lange Syndrome Foudation


Cornelia De Lange Syndrome Foudation

Full Description


From kindergarten classrooms to U.S. congressional offices, the CdLS Foundation is committed to educating the public about the syndrome.
An estimated 20,000 men, women and children have CdLS but remain undiagnosed and/or without the support services the Foundation provides. In order to raise consciousness of CdLS among the public, the Foundation produces materials specific for awareness. These include bookmarks, fliers, brochures, a public service announcement, electronic presentations, and more. The Foundation also provides materials specific to students and Services,Medical | professionals.

In 2006, staff and members of the Foundation’’s board of directors traveled to Washington, D.C., to visit dozens of congressional offices and educate the country’’s leaders about the syndrome. That work continues today, as we advocate for federal awareness and support.

If you are interested in raising awareness in your community, view our Raising Awareness Web page for ideas and inspiration. You can also volunteer to become an Awareness Coordinator.



Counties Served

  1. StateWide
  2. Adams
  3. Alcorn
  4. Amite
  5. Attala
  6. Benton
  7. Bolivar
  8. Calhoun
  9. Carroll
  10. Chickasaw
  11. Choctaw
  12. Claiborne
  13. Clarke
  14. Clay
  15. Coahoma
  16. Copiah
  17. Covington
  18. DeSoto
  19. Forrest
  20. Franklin
  21. George
  22. Greene
  23. Grenada
  24. Hancock
  25. Harrison
  26. Hinds
  27. Holmes
  28. Humphreys
  29. Issaquena
  30. Itawamba
  31. Jackson
  32. Jasper
  33. Jefferson
  34. Jefferson Davis
  35. Jones
  36. Kemper
  37. Lafayette
  38. Lamar
  39. Lauderdale
  40. Lawrence
  41. Leake
  42. Lee
  43. Leflore
  44. Lincoln
  45. Lowndes
  46. Madison
  47. Marion
  48. Marshall
  49. Monroe
  50. Montgomery
  51. Neshoba
  52. Newton
  53. Noxubee
  54. Oktibbeha
  55. Panola
  56. Pearl River
  57. Perry
  58. Pike
  59. Pontotoc
  60. Prentiss
  61. Quitman
  62. Rankin
  63. Scott
  64. Sharkey
  65. Simpson
  66. Smith
  67. Stone
  68. Sunflower
  69. Tallahatchie
  70. Tate
  71. Tippah
  72. Tishomingo
  73. Tunica
  74. Union
  75. Walthall
  76. Warren
  77. Washington
  78. Wayne
  79. Webster
  80. Wilkinson
  81. Winston
  82. Yalobusha
  83. Yazoo

SKU

SKU130826070144

Telephone

(860) 676-8166

TTY

800-753-2357

Mailing Address

302 West Main Street #100, Avon, CT 06001

email

info@cdlsusa.org